Why I Do This

I am the mom of a child who is a seeker. He seeks and craves sensations, especially the crashing ones! Sensory Processing Disorder is a part of our journey and lives. It is a daily struggle and joy. I am blessed to be at home with this wild messy loving super smart child. Sensory processing is a journey I am happy to share. Our experiences may make you laugh or cry. The only certainty is that there will be experiences and they will be plentiful! My son is going to weather many days and drag me along with him! Together we will discover what our journey is meant to be.

Sunday, March 16, 2014

Terrible, Horrible, No Good, Very Bad Day

Almost 5 years ago my son was born.  In the last 5 years I have versed myself in things I never thought I would have any need to know about.  Certainly I had heard about speech, physical and occupational therapy.  I had even done some class work with understanding them when I was working on my bachelors.  But I did not have a clue that I would need to understand what it was to be able to help my son in the best way possible.  And still even with all my knowledge and patience and education, I can't figure out how to make it consistent.....

I take my child to occupational therapy once or twice a week (depending on the schedule).  I have sat and watched countless times.  I am like a spy at the circus!  He does the most amazing and often hard tasks with guidance.  Sometimes those tasks are not climbing and jumping but sitting still and focused!  He never complains about going and loves being there.  He meets great kids and has an acceptance of all abilities and ages. 

We have tried aqua occupational therapy.  It is hard work and it is good for him. He wears 8 pound weights, flipper fins and finds small objects in the pool while keeping his wet towel on his shoulders like a cape  ~ it is hard work.  The hardest part is his desire to just swim and play.  I sit and watch.  He gets worn out.  The heavy lifting, the fine motor the listening all rolled into the greatest place on earth ~ the pool!  But when we leave, he is calmer and more ready to accept a message.

Espen takes a yoga class on the weekend right now.  He has a terribly hard time with body awareness and we have found that it seriously helps.  It is calming and fun for him yet he is learning about his body and regulation.  I have watched a couple and try not to be distracting.  He is also interacting with children his age, working together and following instructions.   We have helpful kid friendly yoga cards at home we can do it here too but he gets it with the teacher. 

We just finished 8 visits with the behavioral therapist.  I gave it a shot and tried.  We got some good help but some of it was not productive with occupational therapy.  I have been doing this a long time it seems and I know when we need to move on.  I can read the book, no need to keep my child in a 5x5 room with 4 adults, getting to hot, smelling funny smells doing his best to sit still for even 5 minutes.  It was a set up for bad behavior because his senses were all wacky, not because he was bad.  But I learned some tricks that I can use and we try.  Oddly during that time, we somehow managed to get him out of our bed.  We moved his bed time from 7:45pm until 8:30pm and we feed him an entire serving of either oatmeal or cream of wheat at about 8pm.  He is in his bed all night with few exceptions.  Most importantly I started reading Is It Sensory or Is It Behavior, a book not recommended by the behavior therapist but the occupational therapist.  It is super helpful to me in understanding a bad behavior or a sensory seeking behavior. 

And yet even with all the knowledge and resources I have and have learned it is still hard to have days like yesterday.  He was like a roller coaster of crazy.  He was moving at lightening speed.  Doing silly yet super dangerous things with no concern.  Never once stopping to actually listen to me.  He hardly ate (which we all know makes us crazed).  He got super hot in the clothes he was in yet pitched a fit when I forced him to change.  It made me crazy which didn't help anything.  The other side of the behavior coin was super great.  He was funny and happy and compliant.  By the end of the day we had all reached our breaking point and I ended up in tears, Espen ended up in tears and daddy took a time out in the garage. 

Bed time story included Alexander and the Terrible, Horrible, No Good, Very Bad Day.  And instead of re-hashing all the bad things I simply left him with a kiss and the promise of a new day tomorrow.  It is all I can do.  What's done is done.  But it will be a new day tomorrow.  Full of new things and better moods.  A chance to just try.  In a way, I wished him enough.

What made yesterday different... He had some sugary snacks.  The moon was full.  He was actually sweaty and hot in his body.  We stayed home in an unstructured environment all day.  I encouraged solo play so I could do yard work.  The wind was blowing like crazy causing the wind chimes I love to clash together all day (and he was outside in it).  He was up late the night before and was tired.  He has had sensitive skin for a week now.  He is constipated beyond belief.  He was hungry.  Mommy was gone Friday night at work. 

We have no idea what made the day to be totally off.  We just know it was a rough ride and we all needed a break.  It is days like that when Doug looks at me and says "he will always be an only child because we do not have the energy reserves to handle any more"... and I wonder if he is right. 

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