I am a mom. I am educated (have a masters degree even). I have an amazing adoption story. I have a husband who is none to excited for me to share our journey. I do my best to keep some anonymity.
When Espen was small I searched the web for folks with similar complaints. I searched for help and answers. I found few because I did not know what I was searching for. I started writing about our journey in my blog in hopes that people would find me! I shared a lot of poop stories. We moved to Nebraska and the differences between our child and other children his age became increasingly noticeable. I was afraid, frantic and sometimes just exhausted. I had no one to relate to, bounce ideas off of or ask for help. I turned to our pediatrician and found no help. In a fit of tears one afternoon I happened upon a therapy center that GOT ME. I was finally in a place that understood my son! And we were accepted.
We had a name for it. Our first diagnosis when he was three was Sensory Processing Disorder. And I still could not find any parents that wanted to share experiences or successes. I started a facebook page and broke my blog off into just one for SPD in hopes of meeting similar folks and drawing a network of support around us.
We were still different and life was just hard. Entering kindergarten we discovered just how much harder it was going to be for our beautiful little boy. The wiggles, the wild, the issues masked all ability to learn. We sought help from several sources and finally landed at Boys Town Pediatrics and discovered our son has "high" functioning autism, ADHD and ODD as well as SPD. So we knew we had much to learn.
He is now in the 3rd grade and we are living in Oklahoma. Resources are more scarce here. We have experienced much more frustrations and behavior challenges than we have in a number of years. Our experiences are often hard, sometimes funny and always dramatic.
I tell the truth about hard things. I share my feelings, frustrations, hopes, mishaps and joys. Sometimes I am mad. I tell it like it is FOR US... because it is not the same for everyone! Everything about parenting is not all rainbows and happy... and I tell the good with the bad!
I hope to build up support and a community of folks. I don't want anyone to feel as lonely and isolated as I did. But I also write and share because it is good for me.... because it makes me feel less isolated, less mad that the world is not perfect, less pissed off at the weird things that happen to us!
Read on... I have opened our lives up so you can see what a day in our journey is like!
No comments:
Post a Comment
Note: Only a member of this blog may post a comment.